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clairebear
05-06-2010, 03:24 PM
About a year and three months ago i started to get a really heavy pain in my feet and legs when i retired to bed. After a short while i went to the docs who done bloods. I was then called back into the docs and he asked if i had pain in any other joints and i said well yeah i've started to get some pain in my left hand, he nodded and said yes your rheumatoid factor in your blood was positive which indicates you have rheumatoid arthritis. As you can prob imagine i was shocked and had a few crack ups over the next few weeks as i tried to get my head around it. I was referred to a rheumatologist, when i went to see him and explained the symptoms, which at that time was some flare ups in my hands especially the left hand and the achy feeling in my legs at bedtime, he said it sounded like rheumatoid arthritis. He gave me pain killers and antiflamitries. Then i didn't see him again for some months due to cancellations on their part, when i did see him again i explained that things were much better apart from if i'd been on my feet a lot. He said well it could be very early stages of ra or it could be something else so he took more bloods and that was that. Then around 2 months ago i had a really bad flare up, pain flitting in just about every joint, the doc put my antiflamitry up to 90 mg the strongest one and he tried steroids which didn't work, my joints were very weak, he then put me onto a disease modifier (hydroclorequin) which gave me a really nasty rash so they had to take me back off them again. Then the flare seemed to go as quickly as it had come on. Then a few weeks later it decided to grace me with it's presence again and came back. This time i am very fatigued, so exhausted, i've just no energy. I am now on another disease modifier sulfasalisine or something like that lol. I'm on 2 vitamin a & d as the blood showed it was low. I'm on arcoxia 90mg and i've just had a steroid injection and i've had an antiflamitry injection and i've been on lots of pain killers which haven't been working so the doc has now given me morphine. I haven't even been told for defo that it is rheumatoid but already my body is been pumped full of drugs. My neck is so bad just now, so sore at times i can't even hold my own head up for more than five min. I'm so depressed and snappy, i don't know wether i'm coming or going.

flower
07-12-2010, 01:25 AM
So sorry to hear all the pain and suffering you are going through! I too have suffered just like you. This disease is extremely difficult to cope with. You need to have resilience and courage par excellence. I am investigating a new treatment with antibiotics, if you are interested i can give you detail. Hang in there, you will find the right treatment.
Sending love and good wishes.

Saint
07-23-2010, 01:04 PM
Well, what I found interesting was that I didn't see any of the well-known auto-immune suppression drugs.

Ask your doctor about:

The best: Enbrel auto injectors. This state of the art medicine goes straight to the molecular level but you have to have some pretty good insurance to afford it. I'm on it and it is so good that it put me into semi-remission.

The good: Arava (leflumenide) This is widely used in Europe and is very effective. I used it for the first decade without anything else at all and I have the most serious kind of RA.

The usually necessary: Prednisone. Bad stuff, you should never take more than about 10mg max and beware, after you take it for about six years, you'll be hooked for life because you own body stops making it. But...you'll feel GREAT! Honestly, you can take 5 mg. for a lifetime without any bad effects, but doses over about 20 mg. will cause some pretty bad side effects.

The rest: Methotrexate. The old school version of treatment. Again, some bad side effects, I personally couldnt' take it because it shut my system down, but it's been VERY effective for a very long time for some people. Better, it doesn't have near the bad side effects of Prednisone.