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View Full Version : Medication Complications


DaisyGirl
08-28-2008, 01:36 PM
Let me start with a little background information. I started taking Plaquenil for RA when I was first diagnosed, but I started having vision disturbances almost immediately, so they took me off of that. I tried MTX but I hated how it made me so tired all of the time. So I went off of that and tried the corticosteroids. Well I gained a lot of weight very fast. And we HAD to take me off of that. So I went back to the MTX. My doctors and I could see that it wasn't controlling the RA at all, so my doctor decided Remicade was best. He felt that Enbryl wouldn't last long enough in my system to really control the RA and that we would have best luck with Remicade. Well, I've had two treatments and I noticed that I'm having slight visual disturbances again. I read the literature that I requested for the drug and sure enough it can cause vision problems. So not ready to lose my vision I got to digging into information on all of the biologicals and wouldn't you know it, they all seem to have the possibility of causing me to lose my sight or have problems with my vision.

It would seem that I have a predisposition to having this problem with any medication that might cause it. So here's the rub.... Do I discuss it with my doctor and possibly get off the Remicade and any biological in which case I will lose mobility in a few short years? (I've only been diagnosed for two years and I already need a wheelchair at times.) Or, do I control the disease, and go blind?

I don't like either option and it's not looking good out there that I will find a medication that does not have the potential, or been seen in some patients, to cause vision problems.

Any advice?
Given the choices, which would you choose?

Thanks for any feedback,

Sandi