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View Full Version : new, in pain and depressed.


schweab
10-16-2008, 05:04 PM
I am new on here. I am finding it hard to really talk to anyone about all of this so i figured complete strangers might be easier. I was just diagnosed about a month ago. I am young, and just got married last december. This is a really hard hit on me and has not really seemed to sink in until the last few days. when i was told a few weeks ago that I had RA it was like a relief to finally know what is wrong with me but it isnt until lately that I am feel so very frustrated. I am in so much pain, they bumped my prednisone to 30MG and I have already had 2 cortizone shots. I hurt so bad. I cant go to work. I cant do anything. I am just feeling so depressed about it all. My doctor who i just saw again today for my 2nd shot, seems very baffaled by the amount of pain I am in so she is ordered a MRI to try to find out what else is going on. Why arnt these meds working yet? I need help. I feel so frustrated.

addiew23
10-21-2008, 09:34 AM
Are you swollen? I held A LOT of fluid. I got on one Triamterene HCTZ every morning and dropped 8 POUNDS overnight from fluid retention in my joints. That can be a lot of your pain, too. I also can't handle ice skating rinks and humidity due to the weather factors. For alertness, ask your doctor about Provigil. It isn't caffeine or narcotics and doesn't make you jittery, just alert. I am 30 and got married a year ago. I have a 10 yr old, 4 yr old and am pregnant. I am working on tryin to explain my hand pain and fatigue to my husband. I have fibromyalgia, too. I hope your husband can stand by you and support you b/c this is going to be a lot for him, too. Luckily, I recently got approved for long term disability and am trying to get social security, they just think I'm TOO YOUNG to hurt this much.

malou
09-20-2009, 04:50 AM
I am new on here. I am finding it hard to really talk to anyone about all of this so i figured complete strangers might be easier. I was just diagnosed about a month ago. I am young, and just got married last december. This is a really hard hit on me and has not really seemed to sink in until the last few days. when i was told a few weeks ago that I had RA it was like a relief to finally know what is wrong with me but it isnt until lately that I am feel so very frustrated. I am in so much pain, they bumped my prednisone to 30MG and I have already had 2 cortizone shots. I hurt so bad. I cant go to work. I cant do anything. I am just feeling so depressed about it all. My doctor who i just saw again today for my 2nd shot, seems very baffaled by the amount of pain I am in so she is ordered a MRI to try to find out what else is going on. Why arnt these meds working yet? I need help. I feel so frustrated.

i understand what you've felt..but been curious if you have consulted another doctor for this pain..i understand that you're still young maybe the med you've been taking is not good for you or not working at all..

Mockingbird
09-23-2009, 01:34 AM
You have to follow through on the workups- mine uncovered that I had spondolitis which was affecting my spine and a large cause of my pain. Once that was figured out I had a reason and was better able to pinpoint the whys. water retention is extremely uncomfortable. I struggled till they finally gave me a beta blocker (25 years later) dropped the water and brought my Blood pressure back in line. I feel so much better the the diuretics ever made me feel.

Colorado Gal
09-24-2009, 07:55 PM
Hello, Im new to this forum. I was dx 3.5 years ago I am a single mom. Unfourtunaltely at the time of my dx I had just gotten laid off from my job and was able to get Medicaid, who paid for all of my MD visits and meds.

I have started a new job now but the health insurance is too expensive so currently I have no insurance and running out of my meds. I was feeling great while on my meds, only having a few flares. I now have been off of my Metho for 4 weeks and experiencing the same symtoms as when I was first dx. I am 52 and thinking about applying for disability. It has become more difficult to walk and do normal activites, my mornings are awful it takes me about 3 hours to get going, having difficulty sleeping and popping motrin like it is going out of style.

My feet and hands are really swollen, making it hard to walk or even wear my shoes or rings. I was thinking that amybe I could go holistic, has anyone tried this with results?

Orrymain
09-26-2009, 10:26 PM
I am new on here. I am finding it hard to really talk to anyone about all of this so i figured complete strangers might be easier. I was just diagnosed about a month ago. I am young, and just got married last december. This is a really hard hit on me and has not really seemed to sink in until the last few days. when i was told a few weeks ago that I had RA it was like a relief to finally know what is wrong with me but it isnt until lately that I am feel so very frustrated. I am in so much pain, they bumped my prednisone to 30MG and I have already had 2 cortizone shots. I hurt so bad. I cant go to work. I cant do anything. I am just feeling so depressed about it all. My doctor who i just saw again today for my 2nd shot, seems very baffaled by the amount of pain I am in so she is ordered a MRI to try to find out what else is going on. Why arnt these meds working yet? I need help. I feel so frustrated.

What concerns me is that your doctor is so baffled. It may be that he doesn't deal with RA much and may not really know how to treat it. Have you talked with another doctor?

Mac
10-05-2009, 09:20 PM
I'm new here too. My experience has been somewhat different. You're finding it hard to talk about RA. I'm finding it difficult not to talk about it. I've met several people who have RA and they all want to talk about it. People want to learn from others - there is a measure of comfort in that - and they want to tell someone how much they are hurting and uncertain.

Schweab, you're among friends here. Feel free to say what is on your mind. We may all be the better for it. We learn by sharing.

Mac

Mockingbird
10-05-2009, 10:40 PM
Hello, Im new to this forum. I was dx 3.5 years ago I am a single mom. Unfourtunaltely at the time of my dx I had just gotten laid off from my job and was able to get Medicaid, who paid for all of my MD visits and meds.

I have started a new job now but the health insurance is too expensive so currently I have no insurance and running out of my meds. I was feeling great while on my meds, only having a few flares. I now have been off of my Metho for 4 weeks and experiencing the same symtoms as when I was first dx. I am 52 and thinking about applying for disability. It has become more difficult to walk and do normal activites, my mornings are awful it takes me about 3 hours to get going, having difficulty sleeping and popping motrin like it is going out of style.

My feet and hands are really swollen, making it hard to walk or even wear my shoes or rings. I was thinking that amybe I could go holistic, has anyone tried this with results?
Hiya Colorado- Check with your local pharmacy, when my insurance switched I was very concerned because it was such a poor plan that I would not be able to afford the meds. The pharmacy gave me the prescrips at $4 which was cheaper then my original co-pay! I never had good results with motrin or naproxyn for me they just don't work. The trick is to get the swelling down, swelling means inflammation which usually means pain. If they say the swelling is from water you need to get a diuretic. I can really identify with the walking and your pain, thats where it hit me- eventually I found out it was the discs in my back and not the RA- ask about that, predisone cleared it right up. Good luck