One of those days.

[DaisyGirl]

Sorry for complaining about things. It's my problem, not yours. I won't do it again.

[virgilswan]

i happened to come across this post, and this is hard for anyone to go through. Evreyone needs someone to talk to and what better place to find support than here? Sometimes friends and family dont understand what we are going through. You cant understand unless you live with this kind of pain everyday.The reason i come to these forums is to talk about it with people who get it, and to be there for them like they are for me. Sorry things are so tough,but know that your not alone.

[mozart]

What bothers you, Daisygirl? Everybody undergoes different kinds of problems. It would be very helpful if you tell other people how you feel. You don't have to keep it for yourself. You could always find someone to talk with in this forum.:)

[leighdu]

Sorry for complaining about things. It's my problem, not yours. I won't do it again.

I'm a bit late in replying to this thread, but forums are here for people to share and help each other. Trust me, I've had one of those days over and over and it's hard for people without RA to understand.

[Mac]

Daisygirl,
What ever you do, please talk. That is what forums are for. If anyone has a reason to complain it is someone with RA. If anyone is going to listen and understand it is someone else with RA.

Fire away.

Mac.

[naturelover]

One of those days.
Sorry for complaining about things. It's my problem, not yours. I won't do it again.

hi dude, Have you not heard about counselings for all sort of problems. For which one has to pay from their pocket and it is not one time process. you are asked to visit regularly to come out of the stress or the kind of mental pressure.

Or you not aware of the idiom or phrase, "Shared grievances reduces mental stress and pressure and gives relief."

[DaisyGirl]

Hi Naturelover,

Yes, I'm aware of counseling, I've done that and it is a good idea. At this time, I'm financially strapped and don't have money for those kinds of extras, but I appreciate the advice. I've done counseling before and I know how it works. But no amount of counseling, friendship, or forum, can keep us from having one, of those days.

To all, I'd like to say, Thank You. Thanks for being here for me and each other. Thanks for listening, lending a shoulder and giving advice. Thanks for sharing you individual stories, as they help all of us feel less alone. Thanks for your time, your prayers, and your encouragement.

This disease takes so much from us. It doesn't just take our joints. It takes our energy. It takes our time away from our families and doing the things we love. It takes our plans on days when we can't get going because of the pain. It takes sitting outside watching a football game in the fall because the cold runs down into our joints and makes us ache for days. It takes our tears and asks for more. It takes our patience when we feel overwhelmed from dealing with it day in and day out. And as we try so hard to deal with it using our medicines, our counseling, our forums, our prayers, our friends, and our other resources, we still have days when we feel like no one knows how very hard what we are going through is. We still have days when we feel alone. We still have days when it gets to be too much. And even knowing we aren't alone doesn't always solve that feeling. Sometimes we just have to let it pass.

I'm so lucky and glad to know that I have all of you out there who know just what this is like and just what I'm going through.

Today I feel blessed. And for all of you having "one of those days" I'm here. Always.

DaisyGirl.

[Mockingbird]

Daisygirl, Oh how I know what you mean, over halloween I really wanted to spend some quality time with my kids, took them to the local haunted house and did a tremendous amount of walking which can be very hard for me. By sunday I was eating pain killers just to get in and out of the car. Walking was becoming impossible and painful but I trudged on.

I bring this up because everyone is right, this is where we go to talk about it. I almost cried when I thought that I might not be able to do these things with my grandkids. People don't always get what it is like to worry about the ays this effects us in our work and our play both. Thats why we need support structures. When all was said and done my kids were happy and by monday I felt okay. It's a process we take one day at a time. :)

[DaisyGirl]

Mockingbird, I know just what you mean. We live very near Six Flag St. Louis, and we have season passes. My 11 year old son loves to go and I love to take him, but walking that park requires several pain killers and the next day I'm out of commission but I still do it because of what it means to my son. I have a wheelchair, but the park is hilly and I'm not exactly light so my husband gets worn out pushing me in it. Lately I gave it up and just put up with the walking. I know how hard it must have been for you on Halloween. I'm so glad your family had a great holiday and that you found a way to push through the pain. It's so hard, but the memories we make are so worth it all.

I'm glad you got to feeling better after the hard weekend. And I'm most happy you got the chance to make those great memories with your family. :D

[Mockingbird]

Daisygirl, for the big days like when we went to disney and universal for vacation actually involved me having to -well like train-. We would start by walking through the mall and i would work on getting up the stamina so that I could at least do a partial day. Lucky for me the kids like roller coasters so i would get some sit time while I waited for them. they got these lightweight nifty chairs that you can carry, I swear they are the size of an umbrella, very light and handy! The florida heat did me well actually, the pools were great, so warm...but the flight OMG I was so messed up I had to sleep sitting up the whole vacation. Glad I went though, next time maybe instead of flying we will take a train

[naturelover]

I too took my family for the Halloween weekend to a movie alone as on that day my wife was not doing well much to go out for a ride or some where else. my kid was bit disappointed for going only to movie. Otherwise, we had the celebration at our home with our neighbors and sister.

[DaisyGirl]

I'm sorry your wife was not feeling well. It must hurt you to see her like that. But bravo for taking your son out and making the best you could out of it. And I'm sure she was glad she could be part of the fun at the house.